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I remember this day so clearly, I have never felt more scared in my life and I had no control feeling completely helpless. Alexander’s life hanging in the balance and his life support ventilator continuing to pump air into his lungs barely keeping him alive. There was steroids, antibiotics, diaretics and muscle relaxers all going through his tiny veins but he was deteriorating. Alarms would go off, his heart rate would drop, oxygen would increase to maximum and doctors would work to resuscitate him. The doctor asked if we wanted to continue his care as they were about to take extreme measures that could mean further complications for Xander in the future (already being at risk of brain damage and cerebral palsy due to his prematurity and brain hemorrhage). We were so invested and so in love with this little 490gram baby that we wanted to do everything to save him, he was put on a high frequency ventilator that vibrated his chest and was helping to blow the Co2 out of his body. We couldn’t leave his bedside, too afraid to go to bathroom Incase he stopped breathing, every minute felt like a lifetime, we were at the edge of our seat. We watched all the equipment monitoring his stats and working to keep him alive. This equipment is donated to hospitals by the Humpty Dumpty foundation. On this day, numerous amounts of equipment was used to save Alexander’s life but this was only one day of many hard days when he needed life saving equipment. Please show you’re support and help us raise money for the 1 in 9 babies born that are admitted to NICU or special care units needing medical equipment. On behalf of Alexander we thank you for your support.
09 May 2019
Alexander at 8 weeks old, this is when he was 1kg. It took 2 months for him to gain 500grams.
Here he is still dependent on a ventilator that is breathing for him when he forgets to breath.
140 days ago
141 days ago
Love the Pante’s Xxx
Keep kicking goals you gorgeous little man xxx
A strong little man & even stronger parents! God bless 😘
142 days ago
So proud of you, Xander and your amazing parents too xx
We love you Xander, good luck fam bam, sorry we couldn’t be there! Nat, Sid & Isaac xxx
You’re so strong! Can’t wait for many more crazy adventures together! Best friends forever!
143 days ago
Go team Xander! xx
144 days ago
Great parents and a beautiful boy! Good luck and god bless
Team Xander, we love you!! xx
149 days ago
Keeping kicking goals Xander 💪🏻 Much love to you and your parents xxxx
152 days ago
What an amazing story, such a strong little boy and brave parents xx Mel
153 days ago
158 days ago
161 days ago
Alexander the Great. Could of been more but uncle James didn’t take on my bet.
Keep up the good work guys x o
We love you Xander !
163 days ago
164 days ago
Alexander, you are a beautiful boy! Good Luck to Mum and Dad on race day xxx
Great work Mav, wishing you all the best
165 days ago
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